Brain Inflammation Collaborative, Inc.

Put simply - we look to uncover the connection between neuroinflammation & mental health. This collaborative effort is the first ongoing clinical research study of its kind allowing collaborators to look for patterns and triggers in mental & physical health symptoms. Brain inflammation, as the result of autoimmune processes, infections, allergies, & injuries can trigger or mimic common mental health symptoms such as depression, anxiety, OCD, panic attacks and behavior changes – sometimes even presenting as other serious illnesses such as anorexia. These symptoms are frequently misdiagnosed leading to confusion, delay of care, or even the wrong care. Our research grade historical and longitudinal data collection & biobank database gives patients, clinicians, and researchers tools needed to further the advancements in diagnosis, treatment and prevention of neuroinflammatory illnesses. The platform is simple to use as it tracks patient histories, symptoms, and life events with coordinating bio-sample data all in one centralized location. We use researcher tested data capture and assessment forms along with aggregation protocols used by industry leaders to ensure that the data is research grade. Some customization in individual studies is available. Our study currently includes those with autoimmune forms of Arthritis, AE, Celiac, Crohn’s & UC, Chronic Sinusitis, EDS, IBD, IBS, Long COVID, Lupus, MCAS, ME/CFS, PANDAS/PANS, POTS, Psoriasis, and Sjogren’s. In addition, the following neuropsychiatric disorders are also included: Tourette’s, Bipolar, Eating Disorders, Major Depression, Narcolepsy, OCD, Anxiety Disorders and PTSD. We want to reduce the barriers to research in this understudied area by helping as needed with seed grants, protocol writing assistance, IRB navigation, study data collection & analysis, as well as publication writing guidance.